Team Duchenne
Team Members: Daryl Johnston, Rocket Ismael, Dan Pastorini and Clay Matthews.
Duchenne muscular dystrophy (DMD) is a recessive form of muscular dystrophy, which results in muscle degeneration, difficulty walking, breathing, and death. The incidence is 1 in 3,000. Females and males are affected, though females are rarely affected and are more often carriers. Currently there is no cure for Duchenne muscular dystrophy. The life expectancy typically ranges from the late teens to the mid-20’s although there have been rare cases where individuals have lived into their 40’s.
CureDuchenne was founded by Paul and Debra Miller whose son was diagnosed with DMD in November 2002. Paul is a vice-president of a food company and Debra was in advertising sales before giving up her career to be a stay-at-home mom. Paul and Debra are confident that their business backgrounds will enable them to effectively communicate the need for awareness and funding for Duchenne muscular dystrophy.
“When we got our son’s diagnosis, the pain was unbelievable. We always had faith, but we never truly knew how much we would have to rely on it. We respect and welcome people of all faiths and beliefs, and hope that they are provided the comfort needed to get through these difficult times. Saving these boys has become our life’s work.”
Contact Information:
CureDuchenne
3334 E. Coast Hwy. #157
Corona Del Mar, CA 92625
949-872-2552
http://www.cureduchenne.org/site/PageServer?pagename=Homepage
debra@cureduchenne.org
www.moritzcadillac.com -
